Showing posts with label acceptance. Show all posts
Showing posts with label acceptance. Show all posts

Friday, July 12, 2019

Mary K. Pershall #rcmentalhealth

Mary K Pershall

[twenty-six minutes into the hour - twenty minutes after JM] Pershall begins.

She has an American accent of course. [she grew up in Iowa? Idaho?]

“Mrs Pershall you made a statement to the Royal Commission”.

She talks about the exposure to the mental health system in Victoria through her daughter Anna.

Sit forward a little bit! Commissioners need to hear!

She is 30 [turning 31 this year/2019] - she has a really good relationship with her family and has positive work.

Dame Phyllis [Frost] Centre is a maximum security prison.

She killed someone.

Commissioner asks about Anna’s early years - and early childhood. Signs and symptoms.

Before she went to school she was a delightful and happy child who looked like a little fairy - she was off with the fairies.

She never begged people for toys - she asked for re-runs of the Addams family.

She wanted a hand that got things for you.

She was surprised when Anna asked for this thing.

Anna hated school from the beginning. She had been so happy before school.

After school she would cry.

Partly because she preferred to imagine things in the backyard with Duplo characters and she didn’t like being told what to do in a structured environment.

They didn’t appreciate her spider fantasies - she would prattle on - the children isolated and ostracised her.

She wasn’t physically bullied the Pershalls didn’t take it seriously [there is Mary and Katie her elder sister and maybe a father].

Being shut off the group was a hard thing for Anna’s development brain.

In early high school everyone else was trying to fit in. Anna tried to be happy.

Her family wanted her to smile and be happy at home.

When she was 14 [2002] she restricted her intake of food. Mary didn’t take too much - she has beautiful skin and didn’t want acne and had always been skinny.

Anorexia was around body image - Anna had never been concerned.

Watermelon and diet Pepsi was her diet - she agreed to go to the paed in the RCH.

Her condition was compromised - her heart was on a monitor at night. It was a shock!

She was treated as an outpatient until she was 18 and received excellent care and Mary is grateful to the health system.

She was seen once a week and the doctor is still in contact. For an hour each time - she was protective of that relationship and valued it highly.

She saw a RCH counsellor. [thirty-three minutes into the hour - seven minutes after the start]

Her teens were not trouble-free. She did find a friend and she was very attached to this friend - she would do anything to keep this friend on side.

She and her friend were walking down the street. Enraged Anna so much that the friend was paying attention to someone else

She kicked a thick plate glass window and the police called twice.

Anna had been train-surfing to impress this friend.

Setting boundaries was a message to Pershall - the counsellor was a support to John and Mary - especially the train surfing incident.

Anna is putting her life at risk - she is staying up most of the night. She was 16.

The summer before she went into year 11.

You have to go to bed at 2130 or 2200 - she agreed - Mary was uneasy.

There was a roll of bedding to look like a body - Anna had run away at 2300.

“Teenage runaway”

She had lived with her friends dad on the other side of the river with her friend.

She returned in time to begin year 11.

Pershall talks about those couple of years at uni which were her best.

She went to a senior secondary college and made more friends who appreciated her individuality intelligence and quirky sense of humour.

She went to university to study psychology and met a devoted young man. They still love each other to this day.

She became so sick that it didn’t work out.

They had hope that when she had been in so much pain - as she matured they hope it would get easier for her.

Third year of university - she started to say that people didn’t like her at university any more and it was too hard.

“Just get your degree - I won’t nag you to do anything else,” said her father.

Expected by family and others to get a job or do her studies [postgraduate].

She just didn’t know how to be an adult. [Let her be the kid she could never be!]

Promised her they wouldn’t nag her - she was still living with the boyfriend and the mother.

And they moved into the boyfriends’ house.

She stopped living with him. He still adored her-he couldn’t do anything with her.

Intelligent girl with a good vocabulary. Our tools were words; do this; try this.

We realised she was deteroriating with acholo and drugs.

She moved back when she was 24 - the extent of her a[lcohol] and d[rug use].

She didn’t have a glass of wine at night with her family.

It was mostly synthetic cannabis and she smoked bong after bong.

She moved home after a year living that kind of life until she was 25-ish?

She had a few markers - auditory and visual hallucinations - childhood fantasies?

Mental health was always fragile.

Cannaboids were very harmful to her brain.

An activity - getting dressed up and going on the train. That was one activity she enjoyed.

She looked a lot younger than she was - a size 14 child’s dress in Kmart.

She put on lots of makeup and was very attractive and her method was to talk to random guys and start a conversation.

They would give her drugs and attention and she would live with them.

John and Mary and Katrina wouldn’t know where she was.

She would be gone for days.

Towards the end of 2013 a man gave her ice on the train.

It was a terrible period - she came back a few days later in a very fearful state.

Look what this guy has done to me - cigarette burns.

Self-injury and she really liked ice and this guy.

She rang in a distress state - he’s holding me captive. I went to a neighbour’s house.

She was 95 kilometres away.

She went back to him a few days later.

He was going to kill her? That was the Pershall worry.

They could not restrain her - she had to let go.

Katie was the sister - calling the police - trying to get help through the mental health system.

Attach the words mental health to Anna - alleviate her pain they did their best.

She was slipping away further and further - there was no way to help her.

Reached out again to Dr D - hooked in with systems.

[So I missed about ten minutes of the livestream].

There is something about a box of knives and sharp edges. It is a constant strain.

December 2014 she was using ice - she couldn’t live in the home any longer.

She was scheduled to detox - she would get the maximum amount if she went blotto - for the 3rd time.

She would hook up with people on the Internet and dating sites so people could see her - they were drug addicts.

When was he going to come back?

Scary to be afraid in your own home.

They were apprehensive of her - Katie received calls that the parents were replaced by imposters.

These evil incarnations - [is this splitting?]

She was headed off to detox and met a guy for the weekend and smoking a lot of ice.

Someone rang and accused of horrible things. They had it they were exhausted.

You can’t live with us any more - the last time she was in the Pershall house.

She was admitted to a locked psychiatric ward - she couldn’t control herself and the Pershalls couldn’t.

3 hours later - she was in the emergency ward - she was picked up naked in a service station in Footscray.

They tracked down the service station and the nice young man who had been on duty - she walked in and asked if she could use the restroom and was totally naked.

And stripped by the door and was seen by people working at the service station and people used it.

There were gangs after Anna who would take her - yet she wanted to be in the ward which she was for one week.

She was transferred later on to an involuntary ward - they had a plan to put her there after a while.

As soon as she got into the ward. She was picked up by an older man and she was taken away - they had no say and it was such a disappointment; they were horrified.

“Why weren’t we involved?" She wasn’t capable of making a decision - the guy took her for that reason - he was a security guide.

He was known through a carers’ group - hours of respite so John and Mary had time to themselves.

Then the older man and Anna had a romantic relationship.

Saturday night in the middle of winter - very angry about not being able to go home.

DIdn’t speak to Mary for a few weeks - neither did Jim.

In the emergency ward again - admitted under the Mental Health Act.

If you meet her there you will be able to see her. Mary was excited because she would see Anna again.

the SG said it’s not visiting hours? You’re not allowed here?

Mary had to go away - nothing she could do - one more disappointment.

Flash forward a few days: when she went to the psychiatric ward during visiting hours.

There was lots of coughing and microphone feedback.

There was a guy on shift and got to know Anna - secure psychiatric care - he would do anything and everything she could.

What a predicament - she couldn’t look after herself.

“I need to stay here. I need the help they are giving” the PiC - “you can’t have a bed just because you want it”.

Go to a boarding house - go to Jim’s place. Things were stolen at boarding houses and Anna felt unsafe for that reason.

the PiC that night - “Can’t you keep her?”

“If you care so much about your daughter, why don’t you take her home”?

Mary had other people to consider - Jim had to kick her out.

Briefly describe the time Anna lived at the older gentleman’s house - the man who ended up being killed.

She had an endless supply of guys she knew - they met at detox - he knew a place in the outer suburbs - older man sublet his rooms - Anna ended up there.

It was an interesting place - it was in disarray - a vibrant community around this older man.

Mary came to know the O[lder]M[an] quite well. He had a lot of very close friends who spent time in the kitchen watching SBS and yelling in various tongues and drinking lots of sweet white wine.

Mary mentions in her statement - how many times the guys called the police to stop Anna attacking them?

It was at least twice that she knows about. They called the police - they didn’t retaliate.

She’d shown - she could be strong and violent - that window when she was an anorexic teenager.

She had this powerful anger - she wanted this house when she was quite stable - she wanted the guys to clean it- she got violent when she wouldn’t.

Mary got to know the guys - this girl doesn’t need to be arrested, said one guy.

She didn’t receive any treatment - Anna herself spoke about being afraid of her violent outbursts.

She called Mary - ‘I can’t believe it Mum” - she said his name - what am I going to do? - she knew she wasn’t in control of herself.

We couldn’t get it and she couldn’t get it.

22 November 2015

Anna was pregnant - four months pregnant - she had really tried to do the right thing because she wanted the baby and to get healthy.

She tried not to drink or do drugs.

Lots of voices in her head - synthetic marijuana - they told her awful things and never went away.

Alcohol and prescription medication too - she tried not to use these substances.

She ran out of weed and cigarettes.

Katie did her prescriptions for Anna - she never used it as it was supposed to - she did take it to sleep.

Her brain just imploded.

A call from the police - expected a “dead call”.

It was a “killed someone else’ call.

That time on she has been in custody the last three and a half years as of July 2019.

She serves 17 years - 13 years non-parole.

“As it turns out that prison life is better for Anna than I hoped”.

Partly because she has structure imposed on her.

High dose of antipsychotics and Lithium and antidepressants.

She feels she is actually learning to have relationships.

No-one asks her about her drivers licence or jobs - she does prison jobs.

She can work on how to get along with other people.

The relationship we all have - she can relate to her sister as a sister rather than as a carer.

She could never have a conversation - she talks about her interests. Wait and try to bring her out.

And she is very well-liked in prison and they get help with various English assignments.

Given your experience - what changes do you see necessary? [commissioner question]

Think about children and they can actually have a mental illness - it didn’t occur at the time.

Quiet children who don’t demand attention. - when they get into crisis there is an approach where families can be listened to.

They were never listened to or consulted.

Dismissed as drama queens - exaggerating the extent of Anna’s problems.

As a family there should have been much better accomodation - crisis and longer in a secure environment.

Strange people and getting drunk.

Stabilise and rational decisions.

Anna will always need support to be an active contributing member of our society.

Other people in her position - it will cost a lot of money.

A lot of money to be in prison because of similar issues.

Pershall is excused.

Commissioner question:

Dual diagnosis of mental illness and addiction - what would improve in these scenarios?

Three years ago when they were trying to get help they found it extremely frustrating that they tried to get her in the residential centre for those with addictions; she as turned away because she had mental illness.

She found a place in a park and she was relieved. She got a few residential weeks of care.

She might not have enough Seroquel - she stuffed it into her underpants.

Against the rules - you can’t be here.

She was turned away from both places because of the thing they didn’t treat.

May the witness be excused?


Lunch break. [fifteen minutes at the top of the next hour].

Saturday, November 04, 2017

#autistichistorymonth Cellophane Rainbow and In the beauty of the lilies [Updike]

I had said I wish you a cellophane rainbow, and I was referring directly to this song.

Most of the effects in it are cellophane or transparent. Very prettifying or scarifying depending on your point of view.

There is a really cool play called Alexithymia. I'm still sure in absolute numbers [rather than in percentages] the great majority of alexithymics are neurotypical.

Tom has written three plays and I like what he says about the play for you and the play for everyone else which was coming out in rehearsals.

And I had first known of alexithymia in either 1995 or 2000 depending on Emotional intelligence which we had bought for Granddad or whether it had come back to us after he left the house for retirement village living.

And then there were some heavy critiques on Daniel Goleman and the way he commercialised and commodified emotional intelligence.

The three plays consist of Social_function.exe.

I also looked at the sisters Caley and Creighton and their Autism spectrum explained which useed to be on Thinking Persons' Guide until recently - at least the Facebook.

Our blog by the sisters Caley and Creighton

Communication Placemat from 2015

I cannot call my sister cute because that is treating someone in their twenties like they're three; triggering intense disrespect and disdain.

And I looked at Ink and daggers and the October and November writings of the people from Autonomous Press especially Paperback writer which song I first remember listening to in September 1998 when the marketing and advertising business began to tell intensely.

We can be an accomodating bunch, can't we? Too accomodating, though, and it could be a sign of abuse or neglect [see Autism and Safety from ASAN in three parts].

Creighton's sibling perspective [Caley is the autistic one].

A mother's story

A lot of Creighton's job is explaining to kids - including the kids who have cousins.

Evidence

Visual supports

Colin's perspective - there is also a book called Very late diagnosis.

Culture presentation

Stigma and discrimination

Tenets

Tutoring in Florida and Texas and Skype around the world

People are still talking about Jeremy the dud.

I am reading In the beauty of the lilies, a late Updike which has three generations of Wilmots in it - Clarence; Teddy and Esther/Alma. I think her nickname is Essie and I am halfway through the hardback. Alma is Esther's movie star name.

In the beauty of the lilies on Wikipedia

The second episode of Victoria was great. More plotting around the young Queen's instability and - honestly - mucking around in her friendship because of ideology and politics? Don't do that.


Monday, October 30, 2017

#31for21 #themmlinky Folxs; folk psychology and folk physics / No-one is to blame

Perrault. Is. So. Hard.

That is probably what a whole lot of folklorists are feeling at the moment, especially the ones who translated Cendrillon for an Anglophone mass audience and adapted it accordingly.

The Germans and Central Europeans were on solid ground. Thinking of Wanda Gag's version of Cinderella - the girl who rose from the ashes and worked so hard.

Cinderella was probably one of the first literary folk/fairy tales I connected with.

Like a lot of people, there would be story tapes that had the story on both sides from the Walt Disney Company.

When I became ill in September 1989 a grandmother supplied me with a Disney record player. This took up the first week of the holidays - four days as I recall. I do not remember using it very much, and it was at least two years since I had used a real record player.

And it was well into the 2000s - some eleven - twelve years - later, that I was to access and share one.

Psychologues - they are well in their rights to ask about people's musical preferences and patterns. Audiologues also. After all there is a thriving industry for audiophiles which has catered to their needs and desires for many decades - and it all came from the world of audio engineering.

Carly Fleischmann wrote a consumer review about a really good audio device. She knows this stuff - because in 2009 she told the world about audio filtering. This is a feature which plays prominently into her communication and reception.

And I will admit I love the way she one-upped Stephen Hawking!

There is a 94-year-old English folklorist - Iona Opie - who died this 23 October.

I learnt about Ms Opie in the 1990s. And she was discovering stuff at Bod Library until the very end and making this enormous collection of childrens' literature.

Thinking about my real first tape - the Marshall Cavendish part work of Twigwood. I joined a Yahoo Group about the partworks - and it was a really good Christmas tape. I've tried to identify it to the mid-late 1980s.

I also got to know the characters through a big storybook which had the Large family bears on it by Jill Murphy.

Here is the technology Fleischmann is talking about:

https://www.facebook.com/carlysvoice/posts/10155122887207749 :prose it is called.

https://www.facebook.com/carlysvoice/photos/a.80816742748.80194.68996682748/10155108481352749/?type=3 - Fleischmann reflects on her experiences with Oral Motor Apraxia

https://www.facebook.com/carlysvoice/posts/10155094520502749 - Real Raw Footage of Stephen Hawking - even Arthur Fleischmann was impressed - and chagrined - when Carly one-upped Hawking.

And in very recent times I discovered The Specials and their Xtra Special premium website which is good for things like If I knew then what I know now ... no, that's the Elton John song which was on Goodbye England's Rose.

[and in December 1997 it was a powerful one for me that week before Christmas].

Really loving the closed captions en francaise and probably several other tongues/langues. In May 2017 I tried some subbing and captioneering for children's nursery rhyme videos especially the Finger Family.

Elton John You can make history [young again] from 1996. This is really the first time I have seen Dobkin's directions in the music video styling business. It is like in orinthology - heard only - and that is such a very partial way.

And how the Video Cassette Recorder taught me so many languages in December 1990. Yes - it was the standard EU set - Italiano; castellano; deutsch; Nederlander as well as English and French. And because it was AKAI - I might have expected to see some Japanese.

Timeshifting in the 1990s was very much scheduling and it was so linear. And yet non-linear editing was to be discovered. Which is more true to the way we tell stories?

Of course there is never ever only one way to tell a story.

I am thinking of my first ever musical which I understood was a musical - The sound of music. I remember sitting near the TV on my sheepskin rug and seeing the children in their curtain clothes.

And then in 1996 I had it recorded for me. It is a good thing for students to do - or to have their family do.

We kept a video book which was to be well-organised.

In 2004 I dropped the VCR for a DVD player - seven years too late in my opinion. My first DVD was probably My big fat Greek wedding.

When it came to Sound of Music the Maria-as-nun storyline resonated with me and the whole How do you solve a problem like Maria opener which the nuns did. There was also some nice intertextuality with Sister Act 1 and 2.

One thing I will always remember from mid-1996 is:

If you want to do something
if you want to go somewhere
you have to wake up and pay attention.

And now I am thinking of Stranger things 2 where Eleven had her Robin Humphries moment. It was sort of dealt with in Beyond Stranger Things.

Another source of musical exposures which weren't TV or movies would be advertisements and catalogues. And probably reviews, when I learnt to read them.

[You can tell that I've not forgiven Rupert Murdoch for not making his papers accessible; especially the quality ones like The times and The financial times. 2012? No - 1985-92. Thanks for seven years of functional illiteracy, Dirty Digger and his mates and backers. Though tout court, when you have the equipment and milieu you have...]

And because you never forget your first Elton John - Sacrifice.

It's a human sign when things go wrong...

Kerima Cevik of THE AUTISM WARS writes THE RIPPLE EFFECT.

James Harris writes for the Journal of American Academy of Child and Adolescent Psychology about NEUROTRIBES - 1943 and all that. Kanner; Asperger; Bettelheim; Frankl; Irena S and all those cool people - and by Irena S I mean the woman who made these theories about schizophrenia; schizoaffective; schizotypal personality; schizoid personality.

Meriah Hudson writes about self-contained classrooms and applied behavioural analysis and how developmentally appropriate practice is working out for Moxie. So far - ah, her therapists are human. Blue Lake life.

I especially appreciate the link to Unbound Books.

And thinking about that Camelot musical with the release of the John Fitzgerald Kennedy files.

I had seen a really awesome 50th anniversary documentary which looked at the gun shots. Paddock and his ideas...

What Silberman does not understand is that Kanner was not blaming the parents for causing autism; he was describing their behavior. Kanner and Asperger agreed that a parent whose child had autistic features shared the same underlying genetic background. Surprisingly, Silberman does not hold Asperger to account for his descriptions of parents. For example in his description of Fritz, his first patient, Asperger wrote, “The mother herself was similar to the boy … in the way she moved and spoke, indeed in her whole demeanor, she seemed strange and rather a loner.”25(p41)
By 1948 Kanner had seen 50 children with autism.37 In a presentation to medical professionals about nosology that year, Kanner referred to the innateness of autism (lack of responsiveness and failure to initiate social contact from early life) and to the rearing environment that is contributory to outcome (positive or negative) but not causative of autism. He used his frequently misinterpreted emotional refrigerator metaphor (described later in this essay) in reference to some parents’ own upbringing in describing their emotional distancing from their children. Despite media reports about this presentation, Kanner maintained his views on innateness. Kanner did not blame the parents for causing autism at that time. Later he recognized that the characteristics of many of the parents he described were a forme fruste of the full syndrome.
Thus, in 1956, Kanner and Eisenberg proposed that “if one considers the personalities of the parents who have been described as successfully autistic the possibility suggests itself that they may represent milder manifestations and that the children show the full emergence of the latent structure.”38(p560-561) Kanner’s prescient recognition of what we now refer to as the “broader autism phenotype”39 in a subset of parents set the stage for later studies investigating the broader autism phenotype using behavioral measures and psychological tests,40 language evaluation,41 and, more recently, brain imaging42 and family genetic studies.43,44 These studies demonstrate the extent to which autism is a genetic disorder.
In the 1960s, Kanner expressed concern about psychiatrists and psychologists blaming mothers for causing autism when he wrote, “There was a tendency in this country to view [autism] as a developmental anomaly ascribed exclusively to maternal emotional determinants.”45(p413) He clearly rejected that viewpoint. The confusion about Kanner blaming the parent might have arisen because Kanner and Eisenberg38 considered autism to be a psychobiological disorder in which both genetic makeup and life experiences matter and interact. They wrote, “It is difficult to escape the conclusion that the emotional configuration in the home plays a dynamic role” in the ongoing development of children with autism. They continued, “But it seems to us equally clear that this factor, while important in the development of the syndrome, is not sufficient in itself to result in its appearance … the children are different from the beginning” of life.38(p563) Autism is innate, but the rearing environment matters, and child-rearing practices are important. Beginning in 1955, Kanner began working closely with Jean Simmons in Baltimore to provide an optimal treatment environment for children with autism as described in The Hidden Child: The Linwood Method for Reaching the Autistic Child.46
In his annual orientation lecture for new child psychiatry trainees, Kanner described the optimal attitudes for child rearing (Dr. Kanner's Orientation Lecture, unpublished manuscript, Johns Hopkins University). Taking the child’s perspective, he pointed out that every child needed affection (they like me), acceptance (they want me), and approval (they think I am OK). These attitudes ideally should exist in each home, making it a “triple AAA” home. However, he said, some child-rearing attitudes were detrimental. He said that the attitude of parental overprotection (modern helicopter parents) was for the child like being raised in an emotional oven, and he said that a home where parents were perfectionists who expressed little emotional warmth was, for the child, like being raised in an emotional refrigerator. This formulation was not intended to be a statement about parents of children with autism but rather a general statement about issues in child development; however, he did refer to it when discussing parents with autistic children in his 1948 lecture. However, he emphasized that parents of children with autism were not rejecting, mistreating, or abusing their children; they were perplexed by them. Eisenberg and Kanner recognized that although the emotional configuration of the home mattered in autism, “it is not sufficient in itself to result in its appearance.”38(p563) However, Kanner could not ignore that parents with autistic traits themselves needed additional help, because child-rearing practices were important: the child with autism needed a triple AAA home environment, too. Kanner’s recognition that the rearing environment matters, despite the innateness of the disorder, is essential to our current interventions. Early positive invention makes a difference in outcome and is the focus of current treatment trials.
In summary, that Kanner blamed the parents for causing autism is a misconception that arose in the eugenics era when children with genetic disorders were being killed in Nazi Germany as life unworthy of life. In that era, reference to genetic etiologies was not welcome. The field of genetics was in its infancy, and psychoanalytic theories of the psychosocial causes of severe psychiatric disorders were ascendant. Medical research showed little interest in inborn psychiatric disorders.
The anti-genetic zeitgeist of those times was that environmental factors matter most. This led to the use of terms such as “schizophrenogenic mother,”47 and with media attention the term “refrigerator mother” came into use. However, parents of children with autism were not rejecting their children. They were coming to Kanner for help. [Harris 2016]

And Grunya Sukhareva - did she call autism pathological avoidance sixty years before Newson? Hold the presses, please! [1925 for Sukhareva; 1980 for Newsom - though there was that paper in the later 1980s or 1990]. 1891-1981 are her dates.

There seem to be three good WorldCat books of hers. Now the only Polish psychologist I tried to read is Kazimierz Dabrowski of Positive Disintegration and over-excitabilities fame. Bill Tillier is good at disseminating him. And Janusz Korczak of course - King Matt the First they tried to market as a Harry Potter-type in recent years [2013? 2014? maybe].

Unbound Books from Lana Thomas - it is a Neurodiversity Library - and these are perspective pages on Applied Behavioural Analysis

Institute of Ideas with the Sp!ked people happened on the 28th-30th October, and the Sp!ked Review of Books was all about the Reformation 500 years ago. That is Martin Luther and his 95 theses - 1507.

Amazon wishlist of Unbound Books the autism acceptance library

And there was a really cool video from WORLDbytes about the hundred years since the Russian Revolution.

Battle of Ideas 2017 events and more

Living Freedom is a residential for 18-25 year olds




And Perrault. Is. Still. So. Hard.

That reminds me of the aspie182 video series Exceptionally bad portrayals of the autistic. One of them is about Exorcist the second; the other is about Mozart and the whale [who reminded me of #actuallyautisticadult Britany - note the one T - Actually autistic adult - Britany's blog space on Wordpress] and the last is about Rain Man.

Golan-Globus!

And there was a lovely one called The Magic Riddle by the late Yoram Gross.